- Written by Super User
- Category: Founders
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She has been the spark that brought DialysisEthics to life. The health care worker with a big heart, a big vision - and courage: not afraid to talk to upper levels of government and corporations, not afraid to work with people, not afraid to take a stand when it is required, and not afraid to speak the truth.
Arlene fronted this organization with dignity and compassion. She always has been a person more than happy to share the spotlight and credit – a true leader. Her dogged determination is responsible for laws changed and lives saved.
Brent was one of the Federal Senate witnesses back in 2000 and had spent many years on dialysis. He was a strong spirit who felt an obligation to stand up and testify to what he was seeing.
As was said about him at his eulogy: “He never intended to be a hero, martyr or a saint. He only wanted to be himself – an honest, forthright man who adhered to his convictions, fought for what was right and, in the end, as he did as long as I have known him, risked his own life to make the lives of those around him better.”
A wise, compassionate, understanding, and technically adept member of the group. Founding RN sacrificed many hours of her time away from her family to help those with questions and concerns about their care.
She lent a lot of credibility to the organization and was always there to lend a steady helping hand to those suffering and confused about the medical world they had entered.
Frank Brown spent many years on dialysis and in 2000 he was thought to be the longest living man on dialysis. A well-informed man, a dialysis scholar, he lent his expertise to the 2000 Senate hearings. Too sick to travel, his testimony was included in the Senate's final report.
He is another whose courage, wisdom, and fortitude is missed. Frank Brown's story can be found at: Frank_Brown's_story
Dr. Kenneth Bays:
A passionate, tireless advocate for patient rights, Dr. Bays was another witness at the 2000 Senate hearings. Less than impressed with the care he was receiving in clinic, he discovered the benefits of home dialysis – specifically slow nocturnal which he credited for saving his life. He was on a mission to spread the word about what he had seen and discovered, and was a friend and mentor to many of us. His 2000 Senate testimony can be found at:
Actually there are many people who could be considered “Founders” of DialysisEthics, many who have put in their actions and words into making DEO what has been. However rather than risk leaving anybody out, it was decided to recognize those who were involved in the day-to-day operations of the organization and those who made the Federal Senate hearings possible. To all who have been involved with DEO over the years, THANK YOU!