RedheadedReptile
Joined: 09 Mar 2003
Posts: 69
Posted: Sat Aug 23, 2003 1:58 am Post subject: What about Short-Term Care Plans?
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The existence of Long-Term Care Plans seems to point to the existence of Short-Term Care Plans, too... can you imagine what those would be like?<
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>"Well, since you're no longer a candidate for PD or transplantation, Ms. Jones, our short-term plan for your treatment is to avoid killing you this week."
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Lin
Joined: 28 Oct 2002
Posts: 337
Posted: Sun Aug 24, 2003 10:43 am Post subject: All I want
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to know is WHY when we start dialysis suddenly everyone else has input except us? No one discusses what my long term plans are, and yet they are able to fill out my "long term care plan". Red, you are such a rebel!!! They all write on it, but all I must do is sign it. I was also handed a stupid survey to answer and sign. It asks how I'm doing on dialysis and if I can tie my shoes ect.. Then, just to make sure you gave an honest answer it asks the same redundent questions over and over again, just rephrased.<
>I refuse to answer the questions; I think I'm the only one who has ever refused! (oops, is that considered non compliant lol? No one even told me what the purpose of this survey was, or who gets to read it or use it. I'm tiried of feeling like I'm living in a fishbowl! As Rodney would say "I can't get no respect". Lin.<
>
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Disgusted
Joined: 26 Jan 2003
Posts: 45
Posted: Sun Aug 24, 2003 11:10 am Post subject: questionaire
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Lin, I know exactly which survey you are speaking of. I thought I was losing my mind when I was actually answering the same question over and over again. I finally quit filling out the thing also because they would always
ing the paperwork to you for you to read shortly before take off time when you are too exhausted to ask questions. At this time I am ready for some serious sofa-time and TV.
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eyes and ears
Joined: 12 Apr 2003
Posts: 24
Posted: Sun Aug 24, 2003 4:24 pm Post subject: LOL, lin!
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Maybe we should ask Rodney to be our national spokesperson..is he still alive? His I don't get no respect line is the story of our lives on dialysis. Maybe we should get a poster of Dangerfield and hold it up to our staffs when they treat us like kindergardeners. Think they'd get the message?
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Or how
Joined: 24 Aug 2003
Posts: 1
Posted: Sun Aug 24, 2003 4:27 pm Post subject: about a Talking Book of
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Pinoccio?
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RedheadedReptile
Joined: 09 Mar 2003
Posts: 69
Posted: Mon Aug 25, 2003 7:30 am Post subject: Or how about the 'anonymous surveys'...
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... that have your addressograph in the upper right hand corner?<
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>Every time I fill out a survey, they always know it's mine because I make my own "comments section" if one hasn't been provided.<
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>I swear, the next time I get a survey with the "full of pep" question on it, I am going to write, "Just who are these dialysis patients who are 'full of pep?' I've never seen them!"
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patientwife
Joined: 18 Jul 2003
Posts: 47
Posted: Tue Aug 26, 2003 8:53 am Post subject: Care Plans
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My husband finally had a care plan meeting (after refusing the sign the first set of plans due to incompleteness and no discussion; after placement of the unsigned plans in his medical records with undated, misleading notation, "refused to sign"; after filing of an "informal grievance" re the misleading documentation; after eliciting assistance from Network 13; after development of a second set of plans by staff with no input from nor discussion with my husband).<
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>The dialogue with the neph was very productive. Resulting "planning" would not have happened without the dialogue. The nutritionist was very helpful in responding to a question posed months ago.<
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>The neph did shed some light on care plan meetings from the units' perspective. In response to my husband's question re being given care plans to sign when no one has discussed with him, the neph replied that there are some 800 patients (in this city, I suspect) and it is not possible to meet with as many patients. (?) As the neph also stated, he ,the other neph at FMC who had cared for my husband since latter 2000, and team members had always met with us and/or otherwise responded to any questions posed. That is true and reason that staff's attempt to interfere with the personal dialogue was unacceptable. My husband has a right to dialogue with the neph and to hear his assessment of my husband's medical status.<
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>It is an awful state of affairs when a patient has to be so challenged about a right to participate in his care. <
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RedheadedReptile
Joined: 09 Mar 2003
Posts: 69
Posted: Tue Aug 26, 2003 3:11 pm Post subject: I think they've gotten so used to...
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...patients who just sign the paper, that when someone wants actual input, they don't know what to do.<
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>I'm frustrated with the patients at my unit-- the majority of them don't want to know anything about their treatments, can't be bothered to learn how to calculate their goals, and their main concerns seem to be getting their drinks quickly and getting control of the tv. They think dialysis is something that's done TO them-- for whatever reason, they don't believe they have any control over what happens to them while in the unit. (And I'm just a patient-- I can't imagine what the frustration level is for the SW, Dietician, nephs and staff!)<
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>Until more patients take an interest in their treatments, staff will continue to think that it's up to them to create the care plans.
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Lin
Joined: 28 Oct 2002
Posts: 337
Posted: Tue Aug 26, 2003 11:59 pm Post subject: Huh!
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I kind of understand about them not sitting down and discussing things with some of the pts. because we have many of the ones in our unit that you have described. I always
ing a drink from home because it's my feeling that staff should be attending to medical problems, not passing out little cups of water, unless of course someone has to take meds. during tx.. The other day I had a leaky needle and had a hard time getting help because the techs. were passing out ice like a bunch of stewardesses!<
>Even if they don't sit down and discuss the plan with the pts. there should be a family member or nursing home personell they can discuss things with. I CAN understand and should be allowed input, but still it is just shoved in my face and I'm told "we need you to sign this". I'm not even allowed to take it home to look over, or given a copy. Lin.<
>
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Marty
Joined: 28 Oct 2002
Posts: 160
Posted: Wed Aug 27, 2003 1:58 am Post subject: What the point?
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Why difference does it make if the care plans are discussed or not why even have them. The only thing I can see is that it is in writing rather or not you were given the option of a transplant. Other than that you are going to get the care the center offers you and that's about it.
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Lin
Joined: 28 Oct 2002
Posts: 337
Posted: Wed Aug 27, 2003 2:26 am Post subject: Others
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. I don't want someone assuming what I want or need and then putting it in writing. Pts. should be asked first and then the care plan written up. After all, it's part of your record and should be accurate. The whole purpose of a care plan is to involve all, as we are supposed to be a team, hah! Lin.<
>
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leadsag
Joined: 31 Oct 2002
Posts: 263
Posted: Wed Aug 27, 2003 11:29 am Post subject: Ice/Water
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We are not allowed to have ice or water or any food while on treatment. Now, of course, they make allowances for 'special' patients and I don't mean diabetics, I mean 'certain' people get to have food,
ing in water, etc.
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Lin
Joined: 28 Oct 2002
Posts: 337
Posted: Fri Aug 29, 2003 12:23 am Post subject: Say what!
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Yeah, we have rules too, but I
eak them all the time.<
>I leave my home before 9 am and don't get home till 3 pm or after, and so I usually put a drink and at least half a sandwich in my bag. When no one is looking ( quite freqently!) I sneak a bite. When told you can't eat, drink, (and in some unit) use the bathroom it's worse than being in prison! Lin.
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patient
Joined: 29 Oct 2002
Posts: 137
Posted: Fri Aug 29, 2003 5:22 am Post subject: NO EATING OR DRINKING RULE IS BARBARIC!!!!
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This must be exposed to the hilt! It is utterly controlling and for no other purpose. I am in a unit that allows full eating and drinking priviledges. Its a pleasant place and there are no problems whatsoever. Let's march and do the media thing so the public knows what they are in for if they ever have to go on dialysis. Let's make a real life documentary of patients on dialysis so the public can see the suffering, the dirty units, the pain from poorly run txs and poorly trained techs who ram needles in patients. Or let's make a movie. I'll play the patient, because I am a patient and I've seen it all!
